Conversations

When a child is diagnosed with a complex or long-term condition, the diagnosis is only the beginning. While the clinical conclusion is carefully established and recorded in the health record, parents and caregivers are often left to figure out what happens next beyond healthcare. Too often, that means weeks of searching, phone calls, repeated explanations to different institutions, and new assessments along the way. As a result, connecting families to the right support can take time – and the work of navigating services becomes part of the care itself.